Congenital Myotonic Dystrophy Fight Fund
Registered charity number 205395
We are a charity supporting children and families who have congenital myotonic dystrophy; a little known, life limiting, muscle wasting condition that is so variant in it’s impact no two children present in the same way. We urgently need to find a cure for all children with this devastating condition. We are improving awareness of this rare condition so vital funds for research can be raised to help find a cure. We would also like to connect families and provide any support that is needed.
Congenital Myotonic Dystrophy Fight Fund offers a variety of events to participate in and raise valuable donations to support the charity. Check out the events below for more information.