Congenital Myotonic Dystrophy Fight Fund
Registered charity number 205395
We are a charity supporting children and families who have congenital myotonic dystrophy; a little known, life limiting, muscle wasting condition that is so variant in it’s impact no two children present in the same way. We urgently need to find a cure for all children with this devastating condition. We are improving awareness of this rare condition so vital funds for research can be raised to help find a cure. We would also like to connect families and provide any support that is needed.
Congenital Myotonic Dystrophy Fight Fund offers a variety of events to participate in and raise valuable donations to support the charity. Check out the events below for more information.
Take part in the doitforcharity.com run series by joining thousands of other participants in our fantastic Santa run! Join us in London's Victoria Park for an amazing event in aid of a charity close to your heart…